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Thursday, July 12, 2012

Tiny little heart!!!

Hypoplastic left heart syndrom??????

      
  • Most of the structures on the left side of the heart are too small and underdeveloped (hypoplastic) to provide enough red blood flow for the body’s needs.
  • The small left ventricle, which needs to be large enough and strong enough to pump blood out to the body, simply can’t function effectively.
  • Other left heart structures can also be underdeveloped in varying degrees—including the mitral valve, the aortic valve and the aorta itself

  • Kennedy was diagnosed with HLHS at 20 weeks gestations....only the drs werent happy calling it HLHS until she came into the world.

    HLHS is a conjenital heart defect. Theres was nothing I nor Michael did to cause this problem. I know that my family knows that but for some reason i feel like Michaels bio-mom thinks i did. She hasnt even talked to me since i beged and pleaded with michael to call her. All she is conserned about is "seeing her". Honestly if you cant ask how i am doing then you dont get to "see" her. Plus i dont think she could handle seeing her in this stage.....its hard enough for me to handle.

    This was after her first surgery. This was after the first time i held her. After the first time michael got to hold her.

    Yes her hair is in a mohawk. Its natural.

    Thats the face of HLHS. She didnt do this to her self. I didnt do it. Michael didnt do it. But this is what God gave us.


    1 comment:

    1. She is beautiful. We are praying for her, you, and Michael. She has amazing doctors there to help her. Take care of yourself and try to get rest. You have done EVERYTHING right for her. You will get to bring her home before you know it. If there is ANYTHING that any of you need, just call.

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