For most labor is the hardest part! Not when you know your child with have to have surgery in the first two days of life. Yes i knew that she was going to need surgery, but i didnt know how hard it would be for me to handle. The not knowing was what was killing me. Kennedy Fallyn was born July 5th at 3:28pm. She weighted 5lbs 13.3oz and 20 inches long.
With all the preperation about surgery and other possibliltys. I WAS NOT PREPARED to NOT hold my daughter until she was a day old. Michael wasnt prepared to not to get to hold her until she was two days old. Then later that day She went into her first surgery. "HYBRID STAGE 1: Insert stint into desending aorta. put pulmonary bands on lung to reduse blood flow into lung." Kennedy had this done in two stages due to her small size.
INSERTING STINT INTO AORTA::: went well. No major issues. One stint got stuck on the ballons, but the dr inserted another one in order to hold that one in place.
PULMONARY BANDS::: They did an ultrasound to check on the stints. The one that had gotten stuck had moved. so while they had her chest open they desided to take that stint out and put in the pulmonary bands.
About 7pm Sunday July 8th 2012..................MY HEART STOPPED..............MY daughters heart had stopped, and they were doing chest compressions, they couldn't get it started. As me and michael sat there for what seemed like 20 years, my mom, my sister, and my brother-in-law showed up. The nurse came in.........as i prepared my self for the worst but hoping for the best, They had gotten a heart beat. It was weak but it was her heart. That night her drs descided to put her on echmo (heart lung machine).
She has slowly gotten better but we still arent out of the woods. Kennedy is a super baby. She doesnt know her name. Kennedy doesnt know her diagnosis ( Hyperplastic left heart syndrom & Mitral Vavle stenosis). She doesnt know Mommy and Daddy touch. Kennedy doesnt know PAIN. But still she keeps going on.
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