Is there anything you would have changed with Miss Kennedy?
~~ Honestly....No, Kennedy was made Perfect in her own way. Most parents would say yes but not me, Kennedy was/is a good baby. She taught me that fighting wasn't an option...ITS THE ONLY OPTION. She taught so many people that YES ONE LITTLE BABY CAN TOUCH SO MANY LIFES.What exactly was Kennedy's diagnosis?
~~ Kennedy Had a Congenital Heart Defect(CHD)-- Hypoplastic Left Heart Syndrome(HLHS)== were her Left heart and left heart structures are under developed. Yes this can be deadly if left untreated. Me and Michael went over all of our options, Kennedy would have "maybe" lived 48-72 hrs if we had desided not to anything.(i say maybe because nobody really knows) We wanted to give kennedy the option to fight, not just to give up. We and her drs were ready for anything but no we were prepared for her to leave.What is NEC?
~~ Necrotizing Enterocolitis-- In Human terms, Kennedy was in Renal faliure. Her Intestains died, there was nothing they could do. Even if we pushed for surgery, Kennedy would not have any quality of life. She would have been in pain and we would have kept her here for our own selfish needs. Could this happen to me?
~~ Yes, 1 in 100 children born, sad part about 5% go undiagnosed. Please Please if not for my sanity but for your own, Get a PULSE OX as part of a newborn exam. there are plenty of Celebrities that have passed from undiagnoed CHD's. How did you stay so strong?
~~ Honestly, I dont know. I have a good family and Faith and I leaned on them. Dont get me wrong I had---HAVE my days, I wouldnt be a Mommy if i didn't. I may have come of strong through words but honestly on this side of the computer I AM BALLING LIKE A BABY! Truth is I want my baby, I want Kennedy but I would never want to bring her back because we all die, if 22 days wasnt her time to go then day 35 might have been. Kennedy wouldnt want tears, She want giggles, and grins AND BOWS.lol.. Iwouldn't Want her to suffer for my selfish need to be a MOTHER. I stay strong by thinking of all the thing she would have gone through, And how much fun she is having with her Great grandparent( who in real life would have done anything for her), How much fun she is having Dressing up our four legged children. You have see the bigger picture to be able to be half as strong as we have been, the other half comes from FAITH.
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