- "How did you stay strong and positive throughout everything ?"
"Will he need surgery again in his life?"
- "And how are you doing?"
- "She would want you to be happy... ( my answer usually is that I hope she is not missing me as much)"
- "I hate when people ask me for advice when they know someone else who loses a child (SIDS, accident, stillbirth, etc.) as if they're the same thing. I have to tell them every situation is different and then I feel like a jerk."
- "you're so strong" and "I don't know how you do it." I am just an ordinary woman raising an extraordinary child. I learn from him.
- "will he be able to do things other kids can"
- is he gonna be ok"
- 'both your kids? do you have a heart problem too??
- "what did you do to her?"
- after your baby dies) "What can we do to help?" - I think it's really nice that people ask, but we don't know what to tell them!
- The what can I do was a hard one. Also the people who lost a loved one who would tell me that they knew what I was going through. I would just look at them and ask' oh really, you had a child die?' that usually shut them up real fast
- I also still have a hard time with how many kids do you have. I never know how to answer it and even then it depends on who it is, will I see them again or not,do I feel like explaining the whole story, etc. And the second things is not so much a question I get about being an angel parent but the fact that no one talks about her or asks questions, like she didn't exist.
- "THERES NOTHING MORE I CAN DO FOR YOUR CHILD"
Words that don't mean to hurt, But silently they do.
I am One of the Ones who would never WISH my story on anyone, Yes i see some that COULD grow from it. I have gone through the most painful thing i will EVER go through.
I am Stronger than i even know, but i am strong because i know where to get my Strength(God and My Daughter). I learned from her so much. I look 23 on the outside, but i feel 100+. I Have traveled a bumpy path but my hope is that other learn that I may not have choose this but I choose to see the POSITIVE. As a heart family you learn that strength doesn't come from earthly things but FROM ABOVE! Each heart family have different struggles but we have one thing in common....Our Belief in a Higher/Greater Power. We all travel hand and hand, ready for the unknown praying the family next to you gets better news than you.
Not only The Heart community, But the grieving mom....... I asked all sorts of moms-- Heart parents with kids, Heart Parents with angels(different stages of grief), CDH mom with Angels....ALL!!
All whom would never want this to be there story's.
Next time you see someone cry or sad THINK BEFORE YOU SPEAK and just be there. They will come out they just may need to cry or be sad for that moment.
Some of the Hardest Moments are the ones you dont know about.
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