When you stop am think about abbreviations...lol, tmi, lmao.... You think current hip talk. Well not in the world if hearts. HLHS= hypoplastic left heart syndrome( smaller left ventricle and other left heart functions) MS= mitral valve stenosis ......... Those were Kennedy's diagnosis. Here are some others
When did tummy tubes get so hot????
When heart baby's made them look that way. Kennedy had tubes coming what seemed to be every hole. While most new parents are playing dress up we were playing touch and go. She tryed to go to heaven once before she actually got To go.
Past couple of montages have been a complete journey for me and my husband. Learning what meds do how come there were 5 tubes and last night there were 3. How low the ventilator was? When we could hold her again? How come she on her tummy? What life outside the hospital ment for us? Quality of life? How come she's doing this and not that???
Lots of questions in which the lovely PICU nurses answered. They were our life line into the crazy heart world!!
<3 Huggs
No comments:
Post a Comment